| Muenke Syndrome |
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| Yahoo Support Group |
So what's wrong with these beautiful girls?
Lindsey & Nicole Mohs, our 6 1/2 year old twin daughters were born with a rare disorder called Muenke Syndrome. This syndrome effects cranial facial development as well as the development of some internal organs. As a result 0f many surgeries, both girls have developmental delays as well as learning disabilities. Both have received occupational, physical and speech therapy since early childhood, but still have not reached age-appropriate skill levels.
Muenke syndrome
Definition:
The primary feature of this disease is prematurely fused skull bones along the coronal suture, the growth line which goes over the head from ear to ear. This can result in an abnormally shaped head, wide-set eyes, and flattened cheekbones.
Many children with similar developmental delays have had remarkable success with a treatment know as "The Tomatis Method." Tomatis trained therapists have evaluated Lindsey and Nicole and both girls are considered to be excellent candidates for the treatment. Unfortunately, the treatment is quite costly and becuase very few authorized Tomatis centers exist in the United States, it requires an out of state stay. Treatment consist of 31 days of therapy divided into three loops or sessions spaced 4-6 weeks apart.
Dear Friends,
We, Dan & Cheryl Mohs, the parents of Lindsey & Nicole are seeking to raise funds to get Tomatis treatment for our children. Our expenses for treatment, travel & lodging will likely exceed $16,500. We are greatful to all those who have helped in the past, but these girls still need your help. Thank you for your thoughts, prayers and donations.
God Bless!